The Importance of Peer Mentoring

True, it may seem like no one understands what you're going through after a spinal cord injury… that is unless they have gone through it too! Peer mentors are living proof of what is possible. They are part-guide, part-friend, and they can become an integral part of your growth after a spinal cord injury. Many people with paralysis say their lives would not be where they are today if it wasn't for a peer mentor that showed up and challenged their perspective. 

Whether you seek out a peer mentor or if you want to become one yourself, peer mentoring is one of the best ways to grow after an injury. From access to tried-and-true advice and tricks to having someone to talk to who truly understands, what peer mentoring offers is priceless.  

What can peer mentors help with?  

There is a good reason why almost every spinal cord injury rehabilitation center has a peer mentoring program - because they work. Peer mentors are able to help with almost every issue after a spinal cord injury. They can help with basic SCI questions, like bladder management and they can help with mobility techniques like transferring from the floor to your wheelchair. There is so much to learn about living life with SCI or in a wheelchair that is not or cannot be taught in a rehab setting or by those who just went to school, and experienced peer mentors can help guide you through that learning process for yourself. 

It's important to remember that peer mentors are not medical professionals, so remember to check with your doctor before undertaking any serious changes to your health or lifestyle. Everyone's circumstances and abilities after their spinal cord injury are unique.   

Peer mentoring is a verb.

Access to peer mentors is not limited to official programs at spinal cord injury rehabilitation centers or organizations, but you can also find them by living life, like making new friends through adaptive activities or sports! Whenever you are sharing your experience with another person in order to help encourage and guide them through a difficulty similar to one you have faced before, you are peer mentoring!  

You can find peer mentors everywhere.

Spinal cord injury peer mentors are easier to find than you may think. Independent living centers and disability nonprofits are all great places to start looking. They can also be found in various online support groups, from Facebook groups to virtual spinal cord injury support groups offered by different SCI hospitals and organizations. And if you’re interested in any kind of adaptive sport or recreational activity, you can meet peer mentors in those related groups and teams. 

If you're not an athletic person, try going on a group accessible vacation organized by a wheelchair travel agency (there are many). There you could find some great people and possible peer mentors along your travels. Remember, the important thing is to connect. Having a human connection with someone who truly understands you and your injury is critical. 

To find support or give support, check out our other articles about (A) online and (B) in-person support groups, as well as peer mentoring opportunities with (C) National SCI organizations. 


Level Up - Be Proactive in the SCI Community 

Don’t be a passive observer - live actively and connect with the SCI community! No matter where you are on your paralysis journey, it's never too early or too late to advocate for others as a peer mentor, or seek assistance as a mentee. Most of us easily find ourselves in the roles of mentor and mentee simultaneously, as there’s always something new to improve, learn, and then share when living with a spinal cord injury! When you feel ready, reach out!  

There are many ways to get involved and improve SCI programs and services! Becoming an active participant and giving back may mean asking for help, volunteering, or even becoming a leader in your own community and joining the board of an organization. We all need a community to belong to, and by joining any of the groups, programs, and organizations mentioned in RTI’s community resource articles, you'll be well on your way to making a successful life after a spinal cord injury. 

 

Disclaimer:  We strive to provide the most relevant resources.  You should always check with your healthcare team before changing or adding anything to your recovery.   Our resources should never replace recommendations by your doctor.  

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